There is a certain person who I wish would understand that I'm not hurting horribly because I don't move enough. It's the other way around - I can't move as much as I'd like because I'm hurting horribly. This is especially irritating because the person knows that before I got ill I was an endurance athlete. #pwME #ME #arthritis
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#arthritis
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In addition to all my normal #ME & #arthritis pain, which I'm really quite well adapted to coping with, I have screaming sciatica, which I am really NOT coping with. I've cried out aloud several times this past 24 hours, which I never do normally, and last night when I didn't sleep more than 10 minutes at a time I even wept, which again is something I don't normally do with pain. /wail
@coolpup Thanks, yes I do have some (lovely palm sized ones).
Unfortunately, for me, warmth & heat seem to have minimal impact on the level of discomfort - as opposed to cold which can often make my joints quite painful. At the moment it's mostly my fingers, although my right knee & both hips suffer occasionally.
I don't really understand why some #arthritis sufferers don't always get relief from heat (like me) - although I gather it's something to do with inflammation and inflammatory response around the joints.
My wife has severe arthritis in her back and limbs and she does get significant relief from warmth. We're all different!
Sitting here with fingerless mittens on trying to relieve the #arthritis in my fingers (I don't think they really work but the placebo effect is strong!).
I will probably resort to co-codamol eventually.
Another one of my favorites...CROCHET! I had a little etsy business at one point. I did pretty good, had fairly consistent orders. The thing about that is...taking something you do to relax and turning it into a business was a mistake. Putting absolutely ridiculous time frames for completing on myself was my first mistake. The second, not valuing my time and my commodity. I often priced myself so low that I was "earning" like $2.50 per hour I spent on the projects, or less! And so, I let the etsy business fizzle out and go dark. Will I ever sell my creations again? Maybe. But my love for crochet will be forever...even if my arthritis has other opinions. LOL!
#Crochet #SmallBusiness #Skeleton #Newlyweds #MrAndMrs #Etsy #Hobby #Craft #Crafting #DIY #ThingsILove #Texas #Dallas #Handmade #AmericanMade #Relax #Arthritis #Mistake #LearnFromYourMistakes #Favorite #Fave
#Crochet #SmallBusiness #Skeleton #Newlyweds #MrAndMrs #Etsy #Hobby #Craft #Crafting #DIY #ThingsILove #Texas #Dallas #Handmade #AmericanMade #Relax #Arthritis #Mistake #LearnFromYourMistakes #Favorite #Fave
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I was having a terrible time getting the last two fingers of my right hand to cover the #recorder holes properly.
I figured my #arthritis was getting in the way so switched from #alto to #soprano because the finger distance is a bit closer.
This change helped a little, but then #wildfires literally took my breath away all summer so I had to give up, as coughing ones's guts out doesn't work well with woodwinds.
9/x
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That said, when my joints are flaring, my hands may be able to make fine *motions* but not control fine motor movements with a pen or pencil.
Despite occasional bouts of promising skills sketching or doing caligraphy, most of my life, I have relied on keyboards and mice to write and draw.
I've treasured the occasional periods where I *could* write by hand, but mostly I can't.
4/x
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My hands are very important to me. I spent several years learning #ASL and eventually even got the chance to work FT as an interpreter in a school for a few years!
I always figured the fine motions I kept my hands busy with are a big part of keeping their dexterity *despite* the #Lupus and #arthritis, and I stand by that.
3/x
It's been a wild few days for me. About a week ago, I noticed a weird nodule on my palm.
I've had #Lupus for over 49 years now, and am used to the #arthritis aspects waxing and waning depending on whether or not I'm in full remission at any given time.
Sometimes my hands look like the witch's in Disney's version of Snow White, sometimes they look just a big knobby at the joints but fairly normal.
1/x