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#spoonies

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Brian Hawthorne<p>Some days, it takes until mid-afternoon for me to realize that I am still crashed from over-exertion two days ago. I just realized that in 6 hours, I have so far succeeded at </p><ol><li>Getting out of bed</li><li>Taking morning meds</li><li>Making coffee and breakfast</li><li>Eating and drinking same</li><li>Typing at the world </li><li>Watching the finches at the feeder</li></ol><p><a href="https://infosec.exchange/tags/LC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LC</span></a> <a href="https://infosec.exchange/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://infosec.exchange/tags/LivingWithLongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LivingWithLongCovid</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> <br><a href="https://infosec.exchange/tags/spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonies</span></a> <a href="https://infosec.exchange/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a></p>
datum (n=1)<p>Hey! Are you in the USA? Do you (or someone you know) have any of:</p><ul><li>hypersomnia</li><li>complex sleep disturbances</li><li>postural orthostatic tachycardia syndrome, or POTS</li></ul><p>which started or worsened after a bout of acute COVID-19?</p><p><strong>Trials are open for treatments for these symptoms!</strong></p><blockquote><p>Those interested in participating in the trials can contact the clinic for screening to see if they are eligible. The team can be reached via email at covidtrialsuva@uvahealth.org, or by phone at 434-243-4008 or toll-free at 855-882-5334.</p></blockquote><p>and they seem like good folks:</p><blockquote><p>“We see patients coming in who are frustrated because they look fairly normal, but they cannot fully function and are not being believed,” she said. “So, for those people, I want to say this is truly a disease and you are not imagining anything.”</p></blockquote><p>While UVA is in Virginia the article suggests it is a USA-wide national study.</p><p><a href="https://news.virginia.edu/content/uva-health-takes-aim-long-covid-two-national-clinical-trials" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">news.virginia.edu/content/uva-</span><span class="invisible">health-takes-aim-long-covid-two-national-clinical-trials</span></a></p><p><a href="https://zeroes.ca/tags/COVID19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID19</span></a> <a href="https://zeroes.ca/tags/COVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID</span></a> <a href="https://zeroes.ca/tags/LongCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCOVID</span></a> <a href="https://zeroes.ca/tags/PwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwLC</span></a> <a href="https://zeroes.ca/tags/LC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LC</span></a> <a href="https://zeroes.ca/tags/PEM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PEM</span></a> <a href="https://zeroes.ca/tags/PostExertionalMalaise" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PostExertionalMalaise</span></a> <a href="https://zeroes.ca/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonie</span></a> <a href="https://zeroes.ca/tags/spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonies</span></a></p>
🔥Cassandra🔥<p>Does anyone happen to have informative but concise info about the current federal public service health care plan re: employee entitlement to wage replacement while disabled?</p><p>Dare to dream: dans les deux langues.</p><p><a href="https://ottawa.place/tags/Ottawa" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Ottawa</span></a> <a href="https://ottawa.place/tags/PSHCP" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PSHCP</span></a> <a href="https://ottawa.place/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disability</span></a> <a href="https://ottawa.place/tags/spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonies</span></a></p>
Valerie Roney<p>Ermahgawd!!! <br>I found the OG article that started "spoon theory." I hadn't seen this in years. Am so jazzed. <br><a href="https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">butyoudontlooksick.com/article</span><span class="invisible">s/written-by-christine/the-spoon-theory/</span></a> <br><a href="https://disabled.social/tags/spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonies</span></a> <a href="https://disabled.social/tags/spoonTheory" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonTheory</span></a> <a href="https://disabled.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonie</span></a> <a href="https://disabled.social/tags/spoons" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoons</span></a> <a href="https://disabled.social/tags/butYouDontLookSick" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>butYouDontLookSick</span></a></p>
Valerie Roney<p>I'm struggling in the comfortable but bone weary state I think might be healing, but it's hard to relax into, because survival. 🤷‍♀️</p><p>I continue to yearn for something like long covid recovery homes. </p><p>I think things would shift for a lot of people if they could just get a chance to rest deeply and be well nourished for a few months in a row.</p><p><a href="https://disabled.social/tags/longCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longCovid</span></a> <a href="https://disabled.social/tags/brainFog" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>brainFog</span></a> <a href="https://disabled.social/tags/burnout" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>burnout</span></a> <a href="https://disabled.social/tags/fatigue" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fatigue</span></a> <a href="https://disabled.social/tags/spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonies</span></a></p>
Tom Kindlon<p>🧵 <br>"Chronic diseases misdiagnosed as psychosomatic can lead to long term damage to physical &amp; mental wellbeing, study finds"</p><p><a href="https://www.eurekalert.org/news-releases/1074887" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">eurekalert.org/news-releases/1</span><span class="invisible">074887</span></a></p><p>Research on people with autoimmune diseases but people with other conditions will sadly be able to relate</p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>chronicillness</span></a></span><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>spoonies</span></a></span><br><a href="https://disabled.social/tags/neisvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>neisvoid</span></a><br><a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <br><a href="https://disabled.social/tags/chroniclife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chroniclife</span></a> <br><a href="https://disabled.social/tags/hiddenillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hiddenillness</span></a> <br><a href="https://disabled.social/tags/invisibleillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>invisibleillness</span></a> <br><a href="https://disabled.social/tags/ChronicIllnesses" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllnesses</span></a> <br><a href="https://disabled.social/tags/Spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Spoonies</span></a><br><a href="https://disabled.social/tags/Spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Spoonie</span></a><br><a href="https://disabled.social/tags/ChronicallyIll" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicallyIll</span></a><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/lupus" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>lupus</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/fibromyalgia" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>fibromyalgia</span></a></span><br><a href="https://disabled.social/tags/Fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Fibromyalgia</span></a> <a href="https://disabled.social/tags/Fibro" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Fibro</span></a> <a href="https://disabled.social/tags/FMS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>FMS</span></a> <a href="https://disabled.social/tags/FM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>FM</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwME</span></a> <br>1/</p>
datum (n=1)<p>Hey spoonies in the USA if you want to WFH for a company supporting non-profits: <a href="https://mstdn.social/@abbynormative/114106850091527064" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">mstdn.social/@abbynormative/11</span><span class="invisible">4106850091527064</span></a></p><p><a href="https://zeroes.ca/tags/PwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwLC</span></a> <a href="https://zeroes.ca/tags/spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonies</span></a> <a href="https://zeroes.ca/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonie</span></a></p>
Karen Strickholm<p><span class="h-card" translate="no"><a href="https://beige.party/@sunumbral" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>sunumbral</span></a></span> </p><p>Here comes TMI!!</p><p>Yes pred is a bit of a beast. My body doesn't make enough cortisol, due to an injury to brain from a pituitary tumor. Am seeking the ideal therapeutic dose, aka the "sweet spot"... somewhere around 10-12mgs. The closer I get, the slower I have to go.</p><p>Trouble is, when I get sick (am usually hospitalized), must double++ my steroids. Then start taper again, takes me 3-4 weeks. This time I tried to speed it up. Lesson learned! 😊</p><p><a href="https://mastodon.online/tags/DisabilityMatters" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>DisabilityMatters</span></a><br><a href="https://mastodon.online/tags/Spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Spoonies</span></a></p>
Karen Strickholm<p>Here I am! Smile on my face under that mask. 😊</p><p>Pharmaceutical situation - Sharp steroid titration down. Must take in some capacity to stay alive (treats Secondary Adrenocortical Insuffiency and NTBI).</p><p>Apparently not enough! Went 20mg prednisone &gt; 17mg, been symptomatic all day. Thing is, it's hard to realize sometimes. Ex. Just clicked for me now - nodding off, weakness, fatigue, stomach ache, respiratory, painful joints.</p><p>Just a little window into my disability!</p><p><a href="https://mastodon.online/tags/DisabilityMatters" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>DisabilityMatters</span></a><br><a href="https://mastodon.online/tags/Spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Spoonies</span></a></p>
Kymberly<p>Progress will seems slow now on my jumper now I’m into the sleeves and knitting both at once. <br>Also slowly working on my handspun socks. The yarn is very uneven, which makes it less stretchy, so I’m knitting rib up the Achilles/calves.<br><a href="https://old.mermaid.town/tags/The100DayProject" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>The100DayProject</span></a> <a href="https://old.mermaid.town/tags/knitting" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>knitting</span></a> <a href="https://old.mermaid.town/tags/handspun" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>handspun</span></a> <a href="https://old.mermaid.town/tags/spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonies</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/fiberarts" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>fiberarts</span></a></span></p>
Heather :chickadee:<p>I've been feeling really crummy the last few days, so here's a solidarity selfie with other <a href="https://comicscamp.club/tags/spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonies</span></a> having trouble. Lots of love, everyone. You're not alone. :hearthands: </p><p>[Marked sensitive for eye contact.]</p><p><a href="https://comicscamp.club/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NEISvoid</span></a> <a href="https://comicscamp.club/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllness</span></a> <a href="https://comicscamp.club/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a></p>
Kymberly<p>My first ever darn-as-if-it-is-knitted is done (where both fingers are). Not perfect with the ridiculously high pain levels today, but should be wearable.</p><p>Now to keep knitting and finish this beast - never use a fine yarn for your first knitted garment. </p><p>Further updates on other projects will be up for patrons soon. </p><p><a href="https://old.mermaid.town/tags/knitting" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>knitting</span></a> <a href="https://old.mermaid.town/tags/The100DayProject" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>The100DayProject</span></a> <a href="https://old.mermaid.town/tags/spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonies</span></a></p>
🔥Cassandra🔥<p>Maybe for <a href="https://ottawa.place/tags/spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonies</span></a> specifically?</p><p>Two weeks ago, I had a very busy day that caused my body harm.</p><p>I was out of my apartment for six hours, which is unusual for me. I had a high-stress appointment and walked over 10 km and did an hour of yoga and barely ate anything.</p><p>I was taught to push through using my body's reserves: work first, eat later (/never). This is unhealthy, I know, especially when my reserves are already so low.</p><p>Symptoms I noticed on that day included being freezing and being clumsy. Since then, I've noticed in particular my hair thinning.</p><p>What I'm wondering is if I could *still* be recovering from that very bad day, two weeks later. Is it naive to believe recovery is even possible?</p>
Jill Veldhuis 💾<p>In a house full of <a href="https://kind.social/tags/spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonies</span></a>, bringing in groceries is a family effort.</p><p>* I get them out of the car and set them by the door.<br>* Dad brings them inside.<br>* Mom gets the perishables into the fridge and freezer, leaving the rest for later.</p><p>Then we all collapse in the living room for a few minutes.</p>
Tom Kindlon<p>5/</p><p>Table 1. Never-words, their impact, and suggested alternatives</p><p>from</p><p>Language Matters: What Not to Say to Patients with Long COVID, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, and Other Complex Chronic Disorders</p><p><a href="https://www.mdpi.com/1660-4601/22/2/275" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="">mdpi.com/1660-4601/22/2/275</span><span class="invisible"></span></a></p><p><a href="https://disabled.social/tags/neisvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>neisvoid</span></a><br><a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <br><a href="https://disabled.social/tags/chroniclife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chroniclife</span></a> <br><a href="https://disabled.social/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicPain</span></a> <br><a href="https://disabled.social/tags/Spoonielife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Spoonielife</span></a> <br><a href="https://disabled.social/tags/hiddenillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hiddenillness</span></a> <br><a href="https://disabled.social/tags/invisibleillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>invisibleillness</span></a> <br><a href="https://disabled.social/tags/ChronicIllnesses" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllnesses</span></a> <br><a href="https://disabled.social/tags/Spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Spoonies</span></a><br><a href="https://disabled.social/tags/Spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Spoonie</span></a><br><a href="https://disabled.social/tags/ChronicallyIll" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicallyIll</span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>chronicillness</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>spoonies</span></a></span></p>
Tom Kindlon<p>3/</p><p>Table 1. Never-words, their impact, and suggested alternatives</p><p>from</p><p>Language Matters: What Not to Say to Patients with Long COVID, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, and Other Complex Chronic Disorders</p><p><a href="https://www.mdpi.com/1660-4601/22/2/275" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="">mdpi.com/1660-4601/22/2/275</span><span class="invisible"></span></a></p><p><a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwME</span></a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwLC</span></a> <a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://disabled.social/tags/Spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Spoonies</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>chronicillness</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>spoonies</span></a></span></p>
Tom Kindlon<p>2/</p><p>Table 1. Never-words, their impact, and suggested alternatives</p><p>from</p><p>Language Matters: What Not to Say to Patients with Long COVID, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, and Other Complex Chronic Disorders</p><p><a href="https://www.mdpi.com/1660-4601/22/2/275" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="">mdpi.com/1660-4601/22/2/275</span><span class="invisible"></span></a></p><p><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>chronicillness</span></a></span><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>spoonies</span></a></span><br><a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <br><a href="https://disabled.social/tags/chroniclife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chroniclife</span></a> <br><a href="https://disabled.social/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicPain</span></a> <br><a href="https://disabled.social/tags/Spoonielife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Spoonielife</span></a> <br><a href="https://disabled.social/tags/hiddenillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hiddenillness</span></a> <br><a href="https://disabled.social/tags/invisibleillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>invisibleillness</span></a> <br><a href="https://disabled.social/tags/ChronicIllnesses" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllnesses</span></a> <br><a href="https://disabled.social/tags/Spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Spoonies</span></a><br><a href="https://disabled.social/tags/Spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Spoonie</span></a></p>
JustME<p>Please donate to help my friend with chronic illness afford food this month. 💗 🙏 </p><p>mealtrain.com/56g64r</p><p><span class="h-card"><a href="https://a.gup.pe/u/crowdfunding" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>crowdfunding</span></a></span> <span class="h-card"><a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>chronicillness</span></a></span> <span class="h-card"><a href="https://a.gup.pe/u/disability" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>disability</span></a></span> <span class="h-card"><a href="https://a.gup.pe/u/disabilityjustice" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>disabilityjustice</span></a></span> </p><p><a href="https://mastodon.cloud/tags/mutualaid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mutualaid</span></a> <a href="https://mastodon.cloud/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disability</span></a> <a href="https://mastodon.cloud/tags/spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonies</span></a> <a href="https://mastodon.cloud/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://mastodon.cloud/tags/covid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>covid</span></a> <a href="https://mastodon.cloud/tags/covidsafe" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>covidsafe</span></a></p>
neon_mate<p>Meine ersten bestellten <a href="https://chaos.social/tags/Sticker" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Sticker</span></a> für den <a href="https://chaos.social/tags/38C3" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>38C3</span></a> sind heute angekommen, Mini-Stickerbögen mit kleinen Löffeln. Die Idee hatte ich schon länger und jetzt endlich mal umgesetzt. Und ja, es bezieht sich auf die <a href="https://chaos.social/tags/spoontheory" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoontheory</span></a> und bringt vielleicht ein wenig mehr Awareness und hoffentlich ein Lächeln bei anderen <a href="https://chaos.social/tags/spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonies</span></a>.</p>
Badass Britt :mastodon_lgbt:<p>I know my entire pharmacy team on a first name basis. </p><p>That’s my level of <a href="https://mstdn.games/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllness</span></a>. <br>I see you fellow <a href="https://mstdn.games/tags/Spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Spoonies</span></a> 💜</p>