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#ehlersdanlossyndrome

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Petra van Cronenburg<p><span class="h-card" translate="no"><a href="https://queer.party/@emptyfortress" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>emptyfortress</span></a></span> I boosted it ⬆️ but you could get more visibility using the hashtag <a href="https://mastodon.online/tags/EhlersDanlosSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EhlersDanlosSyndrome</span></a> - and even find people with the syndrome there.</p>
UnCoveredMyths<p>I generally post about <a href="https://autistics.life/tags/Disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Disability</span></a>, <a href="https://autistics.life/tags/MCAS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MCAS</span></a>, <a href="https://autistics.life/tags/EhlersDanlosSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EhlersDanlosSyndrome</span></a>, <a href="https://autistics.life/tags/EDS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EDS</span></a>, and <a href="https://autistics.life/tags/Celiac" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Celiac</span></a>.</p><p>Due to EDS, I use a <a href="https://autistics.life/tags/PowerChair" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PowerChair</span></a>.</p><p>I also enjoy <a href="https://autistics.life/tags/Writing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Writing</span></a> and <a href="https://autistics.life/tags/Reading" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Reading</span></a>. I will occasionally mention when one of my books are free on Amazon. If you need a copy, please let me know.</p><p>I am <a href="https://autistics.life/tags/DeafBlind" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>DeafBlind</span></a>, and write about <a href="https://autistics.life/tags/Accessibility" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Accessibility</span></a>.</p><p>Things I miss: Gardening, Sewing, Crafting, Crocheting, Cooking, Baking, Knitting, Walking, Hiking, Exploring.</p><p>Photos are rare, as words are easier to use to explain concepts.</p>
Bee Turland :verified:<p>Hi there! I'm Bee. This is my <a href="https://phpc.social/tags/introduction" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>introduction</span></a>.</p><p>I am a disabled mom of 5 kids. I have <a href="https://phpc.social/tags/EhlersDanlosSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EhlersDanlosSyndrome</span></a> and <a href="https://phpc.social/tags/POTS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>POTS</span></a>. I am a <a href="https://phpc.social/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disability</span></a> advocate.</p><p>My "day job" (although it's a volunteer position) is as a co-organizer of <a href="https://phpc.social/tags/LonghornPHP" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LonghornPHP</span></a>. I am a "baby developer" who's just learning to code, but I absolutely LOVE the <a href="https://phpc.social/tags/PHP" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PHP</span></a> community. It's like a big family! </p><p>When not conference organizing, I enjoy reading, <a href="https://phpc.social/tags/karaoke" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>karaoke</span></a>, and crafts (including <a href="https://phpc.social/tags/Crocheting" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Crocheting</span></a> , <a href="https://phpc.social/tags/CrossStitch" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CrossStitch</span></a> , and <a href="https://phpc.social/tags/LoomKnitting" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LoomKnitting</span></a>).</p>
Ruth Cheesley (she/her)<p>Hi folks, figured I should finally do an <a href="https://mastodon.online/tags/introduction" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>introduction</span></a> here!</p><p>I'm Ruth, she/her, based in the UK.</p><p>I work full time as Project Lead for <span class="h-card" translate="no"><a href="https://mastodon.online/@mautic" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mautic</span></a></span> - yes, I'm paid to work in <a href="https://mastodon.online/tags/opensource" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>opensource</span></a> - super awesome!</p><p><a href="https://mastodon.online/tags/Mautic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Mautic</span></a> is an Open Source <a href="https://mastodon.online/tags/MarketingAutomation" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MarketingAutomation</span></a> platform which allows you to do cool stuff across the digital experience - <a href="https://mautic.org" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="">mautic.org</span><span class="invisible"></span></a>.</p><p>Outside work I am a <a href="https://mastodon.online/tags/musician" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>musician</span></a> (learning flute, piano &amp; music theory), <a href="https://mastodon.online/tags/buddhist" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>buddhist</span></a> <a href="https://mastodon.online/tags/Vegan" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Vegan</span></a> <a href="https://mastodon.online/tags/Runner" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Runner</span></a>, and live with <a href="https://mastodon.online/tags/EhlersDanlosSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EhlersDanlosSyndrome</span></a>.</p>
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